What's New?
Parent Toolkit
Coming Soon is the Newly Diagnosed Parent Toolkit which provides parents with a general introduction to epilepsy and addresses the most common concerns a parent has when their child is newly diagnosed with epilepsy.
The Toolkit is currently in production and will be available to the public at no cost in the Spring of 2010 after pilot testing. To receive additional information about participating in the pilot phase or to pre-order a copy of the toolkit, please contact us.
What’s the EYC?
Go EyC.org is the Epilepsy Foundation’s newest website for young people with epilepsy. Designed and guided by the National Youth Council, GoEYC.org is THE spot for young people with epilepsy on the web to learn more about living with epilepsy, meet people like themselves, and generally have a place to talk, share stories, and hang out with other people affected by epilepsy.
Be one of the first 3000 to register and get a FREE laptop skin!
Are you on Twitter? Follow us at http://twitter.com/EpilepsyYouth
H1N1 Information
As part of the American Academy of Pediatrics new cooperative agreement with the CDC—the Program to Enhance the Health and Development of Infants and Children—please find an informational resource titled "Novel Influenza A (H1N1) Virus and Children with Underlying Medical Conditions: AAP Work Group Clarifies Children at Highest Risk.” This resource was prepared by an AAP Work Group assembled to review current data on Novel Influenza A (H1N1) Virus and children with special health care needs.
This Work Group, comprised of representatives from the following AAP groups—Council on Children with Disabilities, Council on School Health, Section on Early Education and Child Care, Committee on Infectious Diseases and the Disaster Preparedness Advisory Council—and staff from the Centers for Disease Control and Prevention (CDC), National Center on Birth Defects and Developmental Disabilities has clarified implications for pediatrics related to the September 4, 2009 MMWR article, "Surveillance for Pediatric Deaths Associated with 2009 Pandemic Influenza A (H1N1) Virus Infection United States, April--August 2009."
The linked resource above will assist pediatricians and other pediatric health care providers and advocates to better understand issues related to children at highest risk of experiencing fatal and serious outcomes from H1N1 influenza. It will also help providers further assess issues related to prevention, management and/or treatment of novel influenza A (H1N1) virus in these high risk children.
Alaska Epilepsy: An Online Resource for Parents
Under Project Access, a website resource was launched in 2009 for parents of children/youth with epilepsy in Alaska. It includes basic information about the types, causes, and triggers of seizures; first aid; Seizure Action Plans and other tools; information about and links to national and state resources; and guidance to help parents work with their children's schools.
Tres Familias
Recent DVD offers a new, compelling, and insightful look at three different Hispanic families raising children with special needs. Tres Familias emphasizes many important attributes fathers bring to families. Produced by the Washington State Fathers Network (WSFN, the DVD highlights the joys and challenges these families experience when nurturing, loving, and raising children with autism, epilepsy, or Down syndrome.
The obvious deep affection these parents provide their children, the aspirations they hold for their success, and the demonstrated strong parenting models provide courageous and inspirational examples for all parents. In Spanish with optional English subtitles, approximately 14 minutes in length.
Children with Newly Diagnosed Epilepsy at Risk for Cognitive Problems
Children who have normal IQs before they experience a first seizure may also have problems with language, memory, learning and other cognitive skills, according to a study published in the August 12, 2009, online issue of Neurology, the medical journal of the American Academy of Neurology. »Read More
